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An interesting statistic.  Daily page views on the blog average 1900.

That means someone clicked to a unique page 1900 in a day.

- Susan

Day 17, Sunday September 20, 2026

Day 17

Creatine 1.84

It was over 2.0 and that is bad (kidneys)

WBC 3.5

Platelets 46

He sleeps all the time.  Partly because he is sick, but partly because you can't get an uninterrupted night's sleep in a hospital.

He was able to eat 3 big bites of a chicken salad sandwich and said it tasted almost like a chicken salad sandwich.

- Susan

Day 16

Day 16

The WBC will fluctuate as it grows.  

WBC 3.9

Platelets 52

Hemoglobin 7.6, but he had RBC today

Neutrophils 3.2

- Susan

Day 15

Day 15

We heard someone is considering sending him home early next week (Today is Friday). Home is the hotel attached to the hospital. And the time there is estimated at 2 months.  

WBC 5.9

Platelets are 30.

The platelets are the last to come back after transplant.

He was given platelets today.

He has chemo brain that is bothering him, but he did the PT exercises from memory. Go figure.

He is very fatigued.

He falls asleep sitting up, but he did that at home at his desk.

Food tastes are improving.  It was concrete.  Now it is chocolate concrete, vanilla concrete, etc.

-Susan

Daily Routine

Daily Routine 

I stay in the hospital with Mark for the swing shift.

So, he gets his every little need met immediately.

On the other two shifts, he has to deal with it with the staff.

The nursing ratio is 1/3, so he really is well cared for.  And everyone is wonderful.

-Susan 

Hospital vs Hospital

I have been observing procedures at MD Anderson using my past history of other hospitals.

But, it is apples and oranges.

They do not have a menu for diabetics, nor low salt. So of course, I questioned it.

This is a cancer hospital, not a general hospital, so each patient's food is customized to them.  Plus, as you order, you pick and customize it to your liking.  Mark says the food sounds good on the menu on the app, but everything tastes like concrete to him.

We throw out so much food, it bothers me.  You can order a 1/2 order, so that helps.  

They are still fine tuning the food app and have asked for feedback.  (Yes, we have feedback)

-Susan

Day 14

Day 14

WBC 5.4

No signs of GVHD.

Small issues with BP med and anti itch med side effects.  It is probably the BP med, metoprolol.  Past history.  Heart Docs are coming.  It turns him exhausted and all the good necessary things like walking, stop.

Food tastes like concrete.  He has a system where he chews up a small bite and then swallows it like a pill.

And he has lost his voice.

-Susan