Initially I was referred to Johns Hopkins and Duke University for evaluation for a stem cell transplant. We went to Johns Hopkins and visited the Doctor. He was very thorough. He said the big problem with that is unusual is they would need to match both me and my transplanted heart. After careful consideration he concluded that I would be better off with just treatments. At Duke we talked to the doctor and he flat said he would kill me if I had the stem cell transplant.
Enter MD Anderson. They said I would be eligible for a current trial. It is called the Orca Trial. This trial has been going for 6 years. I am told it will be the standard of care when it is released.
The Orca trial is better because it uses lighter Chemo at the beginning. it also has a much improved outcomes. My doctor says that they are highly interested in transplant patients. All in all this looks very promising. I have posted more info on the Orca-T trial. on a separate page.
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