The night before transplant...

Mark is not feeling sick today, but not hungry and very tired.

The room is big enough that there are two TVs.  The big change is the food. You order what you want, when you want and it comes in less than an hour, like Uber Eats. It still has some controls, breakfast ends at 10:30, like McDonald's (or is that 11).  He uses the room tablet to order.

The other big change for Mark is there is no telemetry.  Just Quiet.  And the menu is not salt free. 

Everything is big in Texas.  His room is on the 18th floor.

-Susan

Stem Cell Transplant SCT

Stem Cell Transplant SCT is day zero, but it usually happens late in the evening.  My guess is the blood transport takes all day.  The last step comes from California. -Susan

Day -1 Radiation done, in the room

Both rounds of irradiation are done.  He is in the hospital room.  We walked over a mile in the hospital today.  Mark refused a wheelchair. -Susan

Tropical Storm Edouard

Tropical Storm Edouard is making landfall here.  It's the flooding that will be the biggest problem for Houston.

Supplies are already here. ( You have met me)

We cross from the hotel to hospital via a sky bridge.

Everyone parks in a high rise parking garage.  But, drop off is outside. -Susan

At home

At home

Everything is fine and cared for with the glaring exception of our air conditioning.  It's down for the fourth time and out.  They are replacing it by this weekend.

Rolando, our handyman, has installed an a/c in both Christopher's bedroom and office.  Everyone else is in the mother in law suite and that a/c is working.

Poor Christopher:  the a/c can't be on high because it is too loud, but it's not cold enough to sleep.  And he's worried about the effect on his birds.

-Susan

Donor

The donor's blood has to under 72 hours old.  So they have begun.  I named him Danger.  Good luck to Danger. - Susan 

Day -2

Day -2

Mark has started to feel more sick. 

Today is the final chemo (F).

His creatine is up (kidneys, up is bad).  He is having to force fluids.  -Susan